When I was first diagnosed with migraines, I was pretty quiet about it. Mostly because I was still trying to figure out what migraines were and what having migraines meant to me.
About a year after I was originally diagnosed, the migraines became far more frequent and intense. It was at that point where I was diagnosed as having chronic migraines. I went from having maybe one migraine a month to at least 3 a week.
The more frequent the migraines became, the more vocal I became about having migraines.
I did that for numerous reasons. The main one being I just wasn't able to do it all anymore. I needed help. And unless you tell people you need help, they don't know.
Becoming more comfortable with being vocal about migraines lead to two really neat things. One, I was able to be more vocal with my doctor. I could ask really incredibly honest and candid questions, questions that I may have previously googled to find an answer to. I was able to sit down with my doctor and be completely honest with him about my fear of having a stroke. And we had a really good, really lengthy conversation about my stroke risks, things that raised my risk, and things I could do to help decrease my risk.
The second really neat thing that happened was people started sharing their migraine stories with me. I learned about different symptoms others suffered from. Which helped shed some light on symptoms I had but didn't quite understand. It helped me realize that some of what I thought was me going crazy was just the migraines.
The other night, a friend of mine texted asking if I ever experienced vertigo with my migraines. When I told her I had, she asked me what I did for them.
Well, a few months ago, I was really struggling with vertigo. I knew it was because I was getting close to needing another round of Botox. But, it was miserable. Being single, working two jobs, and going to school, the vertigo was just too much. After a call to the doctor, I was told to start drinking Gatorade.
Ok, call me crazy, but I absolutely hate Gatorade. Hate it. I have yet to find a flavor that is somewhat bearable. Upon advice from my doctor's secretary, I bought the grape kind (which tastes nothing like any grape I've ever had). I also bought the low calorie kind knowing the vertigo was too much for me to go run on a treadmill to work off the amount of calories in a normal Gatorade. I also bought the kind that was high in electrolytes and high in carbs (which also happened to be the kosher kind).
I quickly learned that sipping on the Gatorade was no way to help the vertigo. I had to actually drink a fair amount of the stuff. And the only way I could somewhat stand to do that was to make sure it was super super cold.
So, I passed this advice on over to my friend. She then told me something that most people wouldn't find nearly as sweet as I did. She said, "When my doctor isn't available, you're my next contact."
I often forget how lucky I am to have the doctor I have. If I call his office, I usually get a call back with an answer in about an hour. If I know my doctor's secretary is out of town, I have his email address. Very rarely am I left to suffer wondering what to do.
I'm so grateful that I have formed the personal relationship with my doctor that I have. Because, if nothing else, it has really helped me to not fear the migraines, to not fear talking about migraines, and to be comfortable enough to share my migraine story with others - especially in their time of need.
Subscribe to:
Post Comments (Atom)

No comments:
Post a Comment